I don't know if I have posted this, but as of the beginning of April, Lincoln weighed in at 28lbs 10oz! Go ACTH treatment!! That is a whopping ~4lb weight gain in 5 weeks. Well, actually this is not that unusual for Linc, almost every month of his life he has gained ~3lbs, except that he had only gained 6oz the previous month, so we were hoping that his weight gain was tapering off.
Lincoln has caught the second cold of his life this past week (the first cold was following his first hospital stay back in September). He has a runny nose, a terrible cough (sometimes he coughs so hard he throws-up), and a low-grade fever (never higher than 102 degrees) that we have been treating with tylenol. All he wants to do was sleep and cry. It is a bummer because next week we will be stuck indoors in the hospital all.week.long. One thing that was interesting is that I did not notice an increase in seizure activity due to his fever...which if you might remember after his 6 month immunizations, he had a rough night of about 20 seizures in a couple of hours. So this was a good thing at least! In fact...after increasing his Topamax dosage to 50mg in the am and 50mg in the pm last Saturday, Andy and I have not noticed any Infantile Spasms since Monday, and we noticed a significant reduction in the other types of seizures. Now we are hoping that this improvement is due to the medication, and not due to the cold (wouldn't that be weird?) that he is just now starting to get better from.
We have a fun weekend coming up. We are planning on getting out of the house as much as possible since we will be vacationing at TMC all of next week for our 4 day video EEG. We are going to go to a friends' birthday bash on Saturday, and then hit the dirt for some fun Jeeping on Sunday. Wish us luck, rest, and sanity during our hospital stay next week.
Here are some pictures from the last few weeks. Enjoy!
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