Thursday, April 30, 2009

Follow up on our announcement.

There will be no New Years' baby. No brother or sister for Lincoln for Christmas. So much for the power of positive thinking, huh? I guess we should have known better. This is miscarriage #2 for us. At least this one was over early though.

For anyone who does not know our history. We have been pregnant 3 times. The first time it ended in miscarriage at 18 weeks. The second pregnancy was Lincoln. And this is the third pregnancy, ending in miscarriage at 5 weeks. Not the best track record.

Sigh.

Maybe we will get it right the next time.

Friday, April 24, 2009

Hospital Update

Well we got out of the hospital yesterday. Things went pretty well. Linc did awesome. He is such a good, sweet, patient little boy. He handled being cooped up better than his parents did.

The doctors didn't learn much from the EEG however, so that is a dissapointment. The seizures are still originating in the left hemishpere, but cannot be pinpointed to a certain lobe, let alone a certain tuber within a lobe. We had a CT scan to try to see if there were any calcium deposits, which can often indicate seizure activity in that region. I haven't heard back about this, but I doubt it would really make a difference in our course of action. Dr. T said that we are not good candidates for epilepsy surgery at this point in time, and that we are going to continue with the medication route. He did say that Linc is not having Infantile Spasms any longer, so this is a very good thing. He seems to think that the Topamax most likely was responsible for this, and that possibly increasing the dosage again, that the focal seizures may come under control as well. We can hope. Even if this is not the case, there are still some more options for different drugs. And maybe down the road, as Linc's brain grows and develops, we will be able to "see" things a bit more clearly on the EEG.

He are some pics of our brave little trooper:










And in other news. Check out Linc's new t-shirt...and the new ticker in the side bar. That is right. We are expecting again. Although there is a ton of time between now and January, and we know that just about anything and everything can go wrong between now and then, we decided that there was really no good reason to not go ahead and share the good news now. If, god forbid, something bad were to happen, that event would not be kept a secret, and you all would find out about it anyway. So we would rather share our happiness now, and hope, pray, and plan for the positive outcome here!



Lincoln approves. He is giving us the thumbs-up!

Friday, April 17, 2009

Update from the cutest baby in So.AZ!

Things are going pretty well. The weather is nice, so we have been going outside a lot more. We bought a pool one 85+ degree weekend, but since then it has cooled back down to the 70's. Not to worry...we will be seeing 100+ weather in just a few more weeks. I am certain that we will get our money's worth out of that pool! I will post a picture of the pool-time fun as soon as it happens!

I don't know if I have posted this, but as of the beginning of April, Lincoln weighed in at 28lbs 10oz! Go ACTH treatment!! That is a whopping ~4lb weight gain in 5 weeks. Well, actually this is not that unusual for Linc, almost every month of his life he has gained ~3lbs, except that he had only gained 6oz the previous month, so we were hoping that his weight gain was tapering off.

Lincoln has caught the second cold of his life this past week (the first cold was following his first hospital stay back in September). He has a runny nose, a terrible cough (sometimes he coughs so hard he throws-up), and a low-grade fever (never higher than 102 degrees) that we have been treating with tylenol. All he wants to do was sleep and cry. It is a bummer because next week we will be stuck indoors in the hospital all.week.long. One thing that was interesting is that I did not notice an increase in seizure activity due to his fever...which if you might remember after his 6 month immunizations, he had a rough night of about 20 seizures in a couple of hours. So this was a good thing at least! In fact...after increasing his Topamax dosage to 50mg in the am and 50mg in the pm last Saturday, Andy and I have not noticed any Infantile Spasms since Monday, and we noticed a significant reduction in the other types of seizures. Now we are hoping that this improvement is due to the medication, and not due to the cold (wouldn't that be weird?) that he is just now starting to get better from.

We have a fun weekend coming up. We are planning on getting out of the house as much as possible since we will be vacationing at TMC all of next week for our 4 day video EEG. We are going to go to a friends' birthday bash on Saturday, and then hit the dirt for some fun Jeeping on Sunday. Wish us luck, rest, and sanity during our hospital stay next week.

Here are some pictures from the last few weeks. Enjoy!


















Tuesday, April 7, 2009

We won!

Lincoln is now officially the cutest baby in southern Arizona! Just like we always thought, of course!! ;)

Thank you so much for all of your voting support! We couldn't have done it without all of the people who love Linc so much!

Sunday, April 5, 2009

Final 4!

Vote for Lincoln again today to help him get to the finals tomorrow!!

http://www.kiimfm.com/Article.asp?id=1256128&spid=32191

Thanks so much!

Friday, April 3, 2009

Vote, Vote, Vote!!

Lincoln is in the "Elite Eight" in the Tucson baby brackets. Vote for Lincoln today to help him get to the final four!

http://www.kiimfm.com/Article.asp?id=1248708&spid=32191

It only takes a second! Thanks so much for the help!!
 

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